education

All posts tagged education

Downtime…..

Published March 17, 2019 by thefamilyof5

We had a great half term. Despite all of us feeling apprehensive about how big girl would be, she was lovely. She played with her sisters, helped out around the house, was kind, respectful, happy and slept better. Just like Christmas break.

She returned to school after a weeks break, by the Tuesday of the first week of school she was already rude, angry, defiant and tired.

Things got progressively worse, my kind gentle big girl was making threats by the weekend. By the following week she was hostile and refusing medication.

With no help from Post Adoption Support, the SEND team or CAMH’s (aside from medication) and school unable to really grasp how school effects her, we were left with little choice but to pull her out of school for a few days.

We told her Tuesday night. She was furious. We were ruining her education and taking her away from her friends she said.

She woke up Wednesday morning and said ‘good morning’ to me for the first time in 2 weeks. She’s had a great few days again. Slept better, enjoyed being with her family, been happy. She tells me she’s had a lovely time, hasn’t missed her friends and isn’t worried about her learning after all because she knows she can do more than school ask of her she tells me.

Baby girl and Middle girl were understandably upset about the prospect of their angry volatile sister staying home from school. I talked it through with them before speaking to Big girl. Baby girl said ‘I’ll support your decision mommy but I can’t promise I will want to play with her, she makes me feel scared’. Baby girl and Middle girl have made me super proud this week, they’ve been respectful and kind and Baby girl did play with Big girl after all. They’re in the playroom as I type in fact, playing with Baby girls new teddy.

Sisters enjoying Comic Relief together!

She’s going back to school tomorrow with a plan for additional down time throughout the day to hopefully stop things building and overspilling when she gets home. Hopefully school will support this. The anxiety has already started to build, she hasn’t slept as much and tells me she’s feeling anxious about going back to school. I’m not sure how many days she will last this time or how many days the rest of us will last either.

We have a reassessment of her EHCP taking place but as no one in the SEND team ever returns my calls or emails it’s difficult for me to know what this will mean. I’ve requested an alternative education provision for her, something that looks like 1:1 tuition that takes place locally but outside of our home.

Without the support of Post Adoption (who tell me it’s an education issue) CAMHS (who only provide medication) and schools inability to see what she can and can’t manage, I’m not sure big girl will get what she needs from the SEND team, which leaves our family in a very fragile position.

I wonder what will need to happen before all of the services start working together and taking proper steps to support my family.

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Who is actually doing their job properly? Are you? I am!

Published February 5, 2019 by thefamilyof5

The last few weeks I have:

Sent various emails informing school of issues

Chased school for a response several times

Sent various emails informing the LEA of issues

Chased the LEA for a response several times

Sent various emails informing Post Adoption of issues

Chased Post adoption for a response several times

Sent various emails informing CAMHS of issues

Chased CAMHS for a response several times

Provided details of tuition that requires payment to LEA

Chased LEA for payment several times

Sent various emails about EHCP’s that are 2+years out of date

Chased LEA for a response several times

( Thank goodness for email I say! )

All whilst carrying out my every day job of being a mom to 3 special needs children which also involves me home educating 2 children because our LEA does not have any suitable provision. Micromanagement of the emotional wellbeing of all 3 traumatised children. Emotionally supporting 1 child because her current educational provision is not meeting her needs. Managing dentist appointments. Occupational therapy referrals. Podiatry referrals. Clubs. Home work projects (pah). A child stressing about work experience, tests and gcse’s. Sibling rivalry. Life story issues. Running a house and being a wife. There’s probably more but my brain is just too sleep deprived to remember them.

I am the only one here doing their job properly!

It all just got too much.

Published November 12, 2018 by thefamilyof5

I’ve noticed all of my blog posts lately are about big girl, she’s really still finding life very tricky.

Since starting at the new special school January things have got progressively worse. Sadly because she masks all of her difficulties in school, the staff have found it very difficult to proactively support her. We have had a few meetings, but it’s hard for them to see the big girl I describe when she presents so differently. It’s been the same issue in every school she’s been too.

We’ve had numerous occasions whereby big girl has come home from school in what I can only describe as a manic state, it often quickly turns to anger, more often than not developing in to violent outbursts. Sometimes the police have to be called.

It’s got pretty bad. Not only is she prescribed anti anxiety medication by Camhs but they now prescribe anti psychotic medication for use when she is struggling, or we know there’s something coming up that she will struggle with. My heart aches 😦

This weekend was another of those manic episodes whereby she was talking gibberish and clearly in a state of complete overwhelm. It’s so sad to see her like that.

She is finding all aspects of her school day stressful, everything from traffic in the taxi, music in PE and loud dinner halls to boys behaving oddly (flirting is my guess) and girls putting all of their emotions and worries on her.

Big girl created a fake persona when she started at this school. She made herself out to be socially able, confident, fun, giggly and a capable. She’s none of those things, in fact I’d go as far as to say she is the opposite. She doesn’t even really like people all that much.

I know why she did it, she wanted to fit in, to be liked. And for a few weeks, maybe a month or so, it worked. She made friends, she felt liked and she enjoyed those positive feelings.

But over time, maintaining this fake personality has taken its toll. She’s become somewhat of an agony aunt to the younger girls it seems. This is a girl who doesn’t understand her own feelings, never mind know what to do about them. The girls in her own class are obviously looking up to her also because they’re getting her to help with their boyfriend issues, and asking her for advice on sex and boys and bullying. Big girl doesn’t even know what sex is, let alone have the slightest interest in boys. So many emotions are being offloaded on to her by peers and almost all of them make no sense to her.

She’d rather play Vets with her sisters.

The fake persona doesn’t end on the playground either. The staff have been seeing her as confident and capable, I imagine they’ve spent time wondering why she’s even in their school especially as she is academically pretty average. They’ve been choosing her to represent the school at events, be the nominated speaker when visitors are in school, be the lead role in a group, she even nominates herself sometimes! The list goes on. And of course she’s done all of the things they’ve asked/expected of her, with a fake smile on her face, she’s a people pleaser, it’s what she does to keep herself safe.

Big girl feels overwhelmed by everyone’s ‘feelings’, their ‘expectations’ of her and of course she also feels ashamed that she is unable to be herself in school. She tells me no one in school has ever seen the real her.

So MrFO5 and I made a difficult decision the weekend and decided to put big girl on a reduced timetable. We are awaiting a date for a meeting with various professionals and school. Big girls EHCP hasn’t been updated since she was home educated, despite a review taking place at my request in July, so at the moment, the plan doesn’t even detail the support she needs in a school environment never mind reflect her needs. We hope a meeting will be arranged before Christmas and we can get big girl the support, or alternative provision that she needs.

I’ve tirelessly tried to support school to see big girl for the emotionally and socially 6yr old that she is, but they just can’t see past the facade of the confident 14yr old she’s pretending to be. So for now, she will attend only 2.5 days a week with full support at lunch and break times. The new timetable we’ve devised gives big girl a break between each day, giving her time to calm down and hopefully to stop her anxiety building throughout the week. The support for break and lunch times will mean she isn’t on the playground and can’t get overwhelmed by the other children’s drama’s and expectations of her.

It’s not an ideal situation. Big girl is in school because her attachment difficulties made home education too intense for her to manage so this extra time at home is going to be difficult for all of us to manage.

Today though, my big girl has enjoyed her 1st half Monday and played with her babydoll. We will continue to plod along this path and support big girl as best as we’re able.

You and your walls!

Published November 1, 2018 by thefamilyof5

I have 3 children, not just 1.

I’m just reminding myself, but mostly others.  I’ve spent 8 years fighting for support for big girl, but there are 2 other equally special little girls that also need support, and a Mommy that isn’t preoccupied and exhausted with school appointments, support services, CAMHS, medication, trauma and violence.

Those people that make it so difficult for big girl to get the help she needs, also need to know that the walls they put in place effect all of my children, my entire family in fact.

Hope you guys sleep well at night.

What’s plan B?

Published May 24, 2018 by thefamilyof5

I tweeted recently, wondering about how or where adopters can go for support if the relationship with their county’s post adoption department breaks down.

Peer support is great but realistically other than a listening ear from other mentally and physically exhausted parents experiencing the same difficulties, there isn’t much they can do to help.

Adoption UK is a great place for facts and sign posting, but they can’t help you access the adoption support fund or attend meetings or offer respite or therapy.

Someone suggested approaching a local voluntary agency, and whilst I’m confident they would like to help, realistically who would fund them to support an adoptive family that’s not on their books.

So where can we go, when the relationship breaks down with your local support service it seems there is no where else to go.

Our own county has 1 manager and 2-3 actual social workers who work alongside 2-3 family support workers. When the newly assigned social worker told us that child on parent violence was normal teen behaviour and we needed generic parenting training our confidence in her was lost. When their manager backed her up and agreed the issues we were experiencing didn’t fall with the post adoption remit, we lost all hope. When the generic local parenting support team that they referred us to said that the difficulties were experiencing were way beyond anything they could help with, we were left feeling abandoned by the very services that were meant to be supporting us.

So where do we go?! When we need someone to help school understand attachment and trauma (because we all know schools don’t listen to us measly parents), where do we go? When we need therapeutic advice or support services, where do we go? When you’re confident almost all members of your family are suffering some kind of ptsd, where do you go? When your children are experiencing difficulties managing their feelings, where do you go? When you need support for siblings, where do you go? There is no where.

The system designed to support us does so conditionally, there’s no plan B.

Let there be light….

Published December 1, 2017 by thefamilyof5

The second bit of good news from this week came yesterday in the form of a phone call.

Last year, when we were fighting to get funding for tuition from big girls ECHP, we built a really supportive and understanding relationship with a manager in the local authority SEND team. She really took the time to get to know us as a family and really heard us when we explained what the girls needs were. I’m confident if it wasn’t for her, taking the time to really listen to us, we’d still be fighting for tuition now. 

After visiting our local special school with that same manager from the SEND team this week, it was agreed that it wasn’t suitable for big girl. The upshot of this, is that the school we really feel is the most likely to be manageable for big girl, is now considered our nearest suitable school. This means that the local authority will provide transport! (If none of this makes sense, go back about 3 posts and all will fall in to place, I think).

The plan was always for her (and her sisters) to return to formal education, this is perhaps just slightly sooner than we planned, but it feels right and even more so with recent events.

Big girls attachment difficulties impact her ability to receive an education from me and inturn that can impact our schedule each day. Her autism makes socialising more difficult, and her attachment style means she avoids it. This really isn’t helpful for her, she needs friends, she needs  ‘no strings’ connections and social interactions with peers. I’m hopeful that she will eventually feel a sense of belonging at this school once she realises she is with children just like her, and who make no emotional demands of her (unlike family, inadvertently, does). Hopefully she’ll find herself.

So now we plan the transition. Big girl is still unaware of this plan, until we have concrete plans to share with her it’s better kept quiet, she’s far too emotionally fragile at the moment to manage such uncertainty. I’m hoping that we can start things pretty quickly, ideally before Christmas with a full time timetable implemented early January. 

I can’t fix everything for her, but I can do everything in my power to give her everything she needs to be the best that she can be. 

If only she knew how much she was loved.

What price should we pay for an education?!

Published May 10, 2016 by thefamilyof5

Why must everything be one long continuous fight!?

In the last 6 years I don’t think there has ever been a time when I’ve not been fighting for support for something for my children! Social care, medical support, education, its never ending!

I’ve been through some pretty tough things in my life, but being an adoptive parent is by far the hardest. Its a really lonely journey, and not many people, professional or not, truly understand the difficulties faced by children suffering the long term effects of neglect and trauma, which makes getting any support nigh on impossible.

We were forced to home educate the girls last year, it wasn’t planned, and it certainly wasn’t choice. Id hoped that the Local Education Authority (LEA) would help us, Id hoped that they’d recognise that I’ve done, am doing, everything I possibly can to help my girls achieve the very best they can. It seems not. We requested some help to fund some tuition via big girls EHC Plan (education health care plan, replaced the statement of special educational needs), not a lot, just a few measly hours a week, I think I said 3hours. It seems that even though they were giving schools thousands of pounds to support her in school, plus the £1900 for her Pupil Premium, they cant even pay for a few hours of tuition. She’s only 3+ years behind though so what the hell eh! Who needs an education anyway!

I also applied recently for an EHC Plan for middle girl, school had planned to do it just before we removed her. The LEA wrote to me today, apparently they don’t feel she qualifies even for an assessment, something to do with mostly achieving a level 2a in year 4 and being seen by an autism service to be chatting to a peer at school on one occasion and seeming to understand the instructions in class?! Mostly nonsense, the Level 2a was probably the only accurate part.

I currently pay £20 a week for 1hours math tuition for my girls. All I wanted was 3hours! 3 measly hours of tuition!! £60 a week! I’m fairly sure all the EHCP panels and tribunals they’ll make me attend will cost a hell of a lot more than £60 a week! They all attracted £1900 each in pupil premium at school, that’s without an EHC Plan, apparently I cant even access that, so where is that money now, what happens to it? The government set it aside for my children’s education, yet they can’t access it unless we completely risk destroying their mental health, and our family unit, just so they can be in school!?

My LEA would prefer I put big girl on anxiety medication (the real cost of which would no doubt be life long and provided by a different department) and sent her to school, rather than provide a few hours a week in tuition! They would rather that middle girl withdrew back in to herself and spent every day scared and confused in school (with therapy paid for by someone else for her foreseeable future), than provide her with a few hours tuition! They would rather my baby girl gave in to the chaos within her, detached from the world and survived in school (with services funded by all manner of departments throughout her life to keep her on the straight and narrow), than support her in an environment that she feels safe. My LEA don’t care if my children are achieving, feeling safe, happy and content (they weren’t in school) or having a mental breakdown, being medicated, or even if our family breaks down, because the cost of all that comes down to a different department!

It shouldn’t be this hard. ALL of my girls deserve an education and the opportunities that will provide them with, but they all also deserve a mommy that isn’t completely exhausted from providing it.

 

 

 

 

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